What 100 Patients with Pulmonary Fibrosis Told Us
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In 2026 we surveyed 100 people in the United States living with pulmonary fibrosis to find out what would make them join a trial, and what would make them stay away. These are directional findings from a hundred patients, not a study result.
But the pattern is clear enough to act on, and three of the seven findings reach well beyond pulmonary fibrosis.
- Finding one: one sentence makes placebo much less frightening
- Finding two: the decision is made at the kitchen table, not in the clinic
- Finding three: distance decides more than the protocol does
